Patients, Families & Caregivers
We’re Here for the Whole Family
Community PēdsCare® walks beside you from the first diagnosis through every stage of care. Our pediatric experts focus on comfort, quality of life, and creating joyful moments—so you can focus on being a family. Services are available to children from the prenatal stage through age 21, wherever you call home.
What You Can Expect
When a child is in palliative or hospice care, families face immense emotional, physical, and logistical challenges. A wide range of services can help support not only the patient, but also their loved ones and caregivers. Here’s a list of valuable services typically offered or accessible through pediatric palliative or hospice care programs.
Medical & Clinical Support
- Pain and symptom management
Tailored interventions to keep the child comfortable. - 24/7 On-Call nursing support
For emergencies or symptom control outside of regular hours. - Care coordination
A case manager or nurse who organizes care among providers and settings.
Emotional & Psychological Support
- Child life specialists
Help children cope through play, art, and age-appropriate communication. - Counseling services
For parents, siblings, and even extended family members. - Grief and bereavement support
Offered before and after death, often continuing for a year or more.
Practical & Daily Living Support
- In-home nursing and health aides
Assist with bathing, feeding, medications, etc. - Respite care
Temporary care to give families a break. - Meal and transportation assistance
Volunteers or local organizations may help with food and rides.
Spiritual & Cultural Care
- Chaplaincy services
Spiritual care that aligns with the family’s beliefs. - Culturally-sensitive support
Ensures traditions and values are respected and integrated into care.
Educational and Advocacy Services
- School liaison services
Help maintain educational connections or coordinate learning support. - Legal and financial guidance
Aid in navigating insurance, benefits, and advance directives. - Family advocacy programs
Support navigating systems and accessing services.
Peer & Community Support
- Family support groups
For parents, siblings, and caregivers to connect with others in similar situations. - Sibling support programs
Special events or counseling for siblings to express their feelings. - Volunteer companion programs
Offer companionship, distraction, or emotional support.
Legacy & Memory-Making Services
- Memory books, handprints, and recordings
Help families create tangible keepsakes. - Photography services
Often provided by nonprofit groups (e.g., Now I Lay Me Down to Sleep). - Celebration of life planning
Helps honor the child in a personal and meaningful way.
We’re here to support you every step of the way. Together, we can ensure your family receives care and support.
LICENSE#: 299993177
Support Us
The Foundation of Community Hospice & Palliative Care generates philanthropic and community support for patient care services, family needs, and community programs.
Contact Us
Community PēdsCare® is here for you, committed to helping you live better.
866-253-6681
Refer a Patient
We answer calls 24 hours a day, seven days a week. To inquire about the status of a currently admitted patient.
877-699-7300